Researching diet to treat constipation and fibroids

On a related note, I was looking up information about diets for chronic constipation and came across (again) The Specific Carbohydrate Diet (SCD). I've had some digestive issues for years, and since my delivery it has gotten worse. Why? I don't know. Is it hormonal changes due to nursing? The result of one more round of IV antibiotics during my c-section.

I feel my issues are due to an improper balance in my intestinal flora and I've been thinking for a while that I need to learn more about how to tweak things so I've got more favorable beneficial bacteria flourishing in my gut.

I've received IV antibiotics more than oral antibiotics during my surgeries and delivery -- I have had to remind myself that thing really could be thrown off by that.

Anyway, the SCD sounds interesting and I'm wondering if it might be worth trying out. I found the yogurt idea to be inspiring (I love to cook) and some of the dietary rules sound similar to what my naturopathic doc and acupuncturist have been telling me -- less simple carbohydrates, cooked vegetables, cut out sugar. I also found reference to this diet helping with eczema -- something else that is linked to intestinal flora issues and a leaky gut -- which might be helpful for my toddler.

BreakingtheViciousCycle.info - informational site for SCD that is based around the book Breaking the Vicious Cycle, which seems to be a SCD bible of sorts.

PecanBread.com - a site about using SCD with children, with lots of info about using it to treat ASD kids


I've also got a Susan Lark book on the way called Fibroid Tumors & Endometriosis that includes information about nutrition to treat fibroids that had good reviews on Amazon. I haven't bought a fibroid book in a while so I might as well try this one.

Fibroids and Endometriosis?

In response to Deb's question about endometriosis testing on my post about infant potty training, no, I haven't specifically had tests for endo. But I did have two HSGs and have been opened up twice -- once for my myo and once for the c-section and nothing was mentioned -- not even on my medical records. Some of my other online fibroid sisters have had endo and fibroids though -- so it is a possibility. In the book The Infertility Cure both conditions are dealt with in the same chapter -- so similar can their causes be.

I've had painful ovulations before, the first one that I recall was back in 1996 when I was just about doubled over in pain at work -- a stressful computer start-up -- and I ended up going to the emergency room just to make sure I didn't have appendicitis. Wanna know where that pain was? The same location as my fibroid showed up years later. I had an ultrasound at the time and it came back clean. After all the acupuncture I've had done I think that partially the pain comes from some form of blood stagnation in that area -- and too much stress will divert the blood flow from your reproductive organs so it it possible that its all related.

Since my c-section I've occassionally felt a few jabs of pain in that area -- which is where Twyla, my new big fibroid is located. It's not too bad so I'm hopeful that she's not going to be an issue.

Lately I've thought, as people respond in surprise when my partner and I mention that we're planning on starting to TTC again later this year, that another factor besides it taking so long and the miscarriages, that also the fibroids I have are another consideration. One good thing for the moment now though is that breastfeeding suppresses estrogen production so it is possible that my fibroids will shrink substantially until my period shows up again. The reduction in estrogen also causes me to have dry skin, so dry I have hives on my upper arms, and it also dries out the girly bits so that sex is a bit uncomfortable. There's no winning.

About my c-section delivery after myomectomy

Friday morning I woke up early, as was typical for my pregnancy, though I couldn't have a snack as I would normally do -- no food after 1:30 AM. I took a shower at 6AM and got myself, my mother and partner ready to head out to the hospital by 7:30 but we were still a little late.

I waddled into the hospital entry and we figured out which elevator to take up to obstetrics where my sister was patiently waiting for us (actually she had texted me on the way to the hospital and I jokingly replied that I had changed my mind about the delivery).

They got us into a room right away, which was used for both pre-op prep and recovery. I changed into a hospital gown with nothing else on though I did leave my socks on for a while as my feet were cold. The nurse hooked me up to a monitor on my belly and the baby started kicking right away -- he hated having things resting on the belly such as books when I was reading in bed at night. They were checking his heartrate and checking me for any contractions. I didn't think I was having any contractions, braxton-hicks or otherwise and this was confirmed by the nurse (I was proud to know my body so well). They got my IV started, hooked me up to some IV fluids to keep me hydrated and then the nurse gave my pubic area a shave with an electric razor.

I explained that my sister would be attending as a doula and they were cool with that. My partner and sister both changed into surgical garb with booties, hats and masks. My sister had brought some lavendar with her to help calm me during the procedure -- a French lavendar sachet smelled awesome. My doctor came in to check in with us, and soon it was time to get into the OR. I rubbed my baby's knees and feet inside of me for one last time.

They wheeled me down the hall just a few doors and into the cold operating room which was full of people who would be assisting with the delivery. There was my OB, another OB, the surgical nurse who helped prep me, another nurse, two anaesthesiologists, my partner and my sister -- and possibly more. The first thing was getting the spinal set up which wasn't painful at all as they had one of those automatic blood pressure cuffs squeezing the life out of my left arm -- I didn't feel anything in my back. Next they lay me out on the operating table and pulled a drape up close to my face -- closer than I thought it would be. We then waited for the spinal to take affect, first a warm feeling and then they kept checking to see if I was getting numb where they would be cutting me open. Finally I was numb enough and they quickly got into action.

The anaethesiologist said to let him know if I felt nauseous and quite soon after I was hit with a wave of nausea. I barely had to say a word before he put in some medication to help control it and it passed quickly. I was feeling stressed and overwelmed though as I could feel pressure of them working on my belly and the curtain was so close to my chin and the spinal does make your breathing feel a little weird. I had my partner rub my shoulders and my sister brought the lavender close to my nose and that helped to keep me together. It was intense being awake during the procedure and they don't give you any sedatives or anything as they don't want to affect the baby, just the spinal which removes the pain sensations but not the touch sensations.

The time came for them to pull out the baby from me and one doctor was pressing (more like heaving) high on my belly while they yanked him out with a suction cap. Oh boy that was a crazy feeling.

Then there he was. A wet, vernix coated crying baby boy. He was a big healthy baby I could see as they whisked him across the room, with long arms and big hands. I got misty at seeing this little being finally here -- and with me in such a state. My partner was recruited to help trim down the umbilical cord and they wiped him off some and did what not and all I could do was look over at him in wonderment. The doctors continued working on me but having the baby to focus on helped to distract me from the pushing and pulling sensations.

Finally they brought the baby over to me (really it was only a few minutes after he was pulled out) and as I started talking to him little Jonah started cooing and making all sorts of noises to me. There was no doubt about it, he knew I was his mama -- what a precious memory that is for me. I was able to touch his soft cheek and give him a kiss and then they had to tend to him some more mostly stabilizing his body temperature I think.

The whole affair lasted about 40-50 minutes total and after that we were wheeled back in to recovery where they got me set up with the PCA pump. A nurse helped to get the baby to latch on and showed my partner what to do. I was totally out of it with the narcotics. My partner, sister and mother got to hold the baby lots at this point while we tried to stay ahead of the pain. I loved how they would try to give me directions and things while I could hardly keep my eyes open.

They moved us into our private suite and over the evening hours they removed my catheter (inserted after the spinal took affect), had me go to the toilet, had me drink cool water, took my and the baby's temp religiously to make sure we were both stable, and switched me onto percocet and ibuprofen. I was able to nurse Jonah with my partner's help and he was wetting diapers, and soon started passing meconium.

I fell asleep with Jonah layed across my chest at one point and when I woke up and saw his little face I just about melted; he was so tiny and perfect. My partner stayed with us in the room and slept a few stretches with the baby next to him. I also shifted to one side of the hospital bed and he lay next to me with Jonah which was super nice as well. It was just a really nice nesting experience and it was like the rest of the world didn't exist for those couple of days.

He was very tied into my voice in the first few days post delivery and would seek me out and start to root if he heard my voice. He's more confident about my presence now so he isn't quite as anxious to seek me out and knows I will come if he needs me.

We decided to check out of the hospital as soon as possible on Sunday as the nurses kept pushing percocet, stool softeners, gas-x and ibuprofen on me. I didn't have that much pain after my myomectomy and also since I had been through that experience my body wasn't as shocked about the pain and I found it manageable. The nurses couldn't seem to understand that even though I kept telling them I was doing okay. On a scale of 1 to 10 my pain never got to be more than a 4 -- unless I was moving around a lot and most of the time it was barely a .5. I also hated that the percocet would make me feel all loopy and I couldn't keep my eyes open. I took ibuprofen for the next five days and after that I didn't need anything.

I found one of the most interesting things about my recovery from the c-section is that compared to how tired and big I felt in late pregnancy my body felt a lot better post delivery. The operation itself also was less invasive than excising the large fibroid and even my OB confirmed that nature wants to make the mother heal quickly to help tend for her baby.

My incision actually looks better than after the myo. The skin lines up better and that extra pad of fat above the incision isn't there any more. Not bad, now I just wonder how I'll look in a bikini (LOL).

My OB said that they felt around while they were cleaning me up and the fibroid didn't feel too significant. He said I can get an ultrasound in six months to see how its doing. My partner asked him how soon we could start trying again (oh brother) and my doc said 8-9 months post-partum as ultrasound studies have shown that the site where the placenta had attached still showed signs of healing at 7 months post-partum.

So, while I don't think the c-section was fun, it was definately not an entirely miserable experience and all things considered I would rather have a scheduled c-section than an emergency c-section.

(I'll add more details as I recall them)

About Uterine Polyps

A new buddy of mine online just posted that she was diagnosed with a polyp. Here's what I shared with her:

Fibroids and polyps can change the microenvironment in your uterus by irritating the lining and causing a reaction akin to what an IUD does I believe. You end up with your body reacting to the "foreign" object but at the same time it's so hyper active from an immune standpoint that it disallows implantation. (some of this is sort of subjective on my part but I've read a lot about implantation, fibroid, etc.)

Do you like your ob/gyn? Don't they have a backup? If you are really feeling put off then maybe try finding help elsewhere -- though here in Seattle getting in to see an ob/gyn as a new patient takes 2 months plus.

Here are some links for you:



Emerging endometrial polyp during controlled ovarian
stimulation affects IVF/ICSI outcome

Results: In the patients with endometrial polyps, no pregnancy was achieved. Clinical pregnancy rates and implantation rates of the second group were 28.35% (55/194) and 13.05%, respectively. Fifteen of the pregnant women (27.27%) experienced miscarriages. In some of the patients, hysteroscopy was performed for removal of the endometrial polyp. In part of them, after the polyp resection, spontaneous pregnancy occurred.
Conclusion: Our results reveal that endometrial polyp <10 mm, appearing during COS is a rare complication and it may have a negative influence on the IVF/ICSI outcome. In order to improve embryo implantation, we need to remove the above mentioned endometrial polyp. Abnormalities at the endometrial level and abnormal embryo–endometrial dialogue may be responsible for some cases of implantation failure. Endometrial polyp may be an impediment to embryo implantation because it acts as space occupying lesion and/or disturbs the expression of various endometrial products such as pinopodes, integrins and cytokines. It is not clear whether the expression of such factor as the endometrial polyp is the reason for implantation failure or is just a reflection of other abnormalities taking place in complex cascade of events.
From: ESHRE Meeting, June 2006 - Implantation

Surgery is usually recommended for polyps, for several reasons:
To try to improve fertility. Polyps may interfere with implantation of a fertilised egg in the lining of the womb, so they're often removed to try to improve the chances of conceiving.
From: Uterine Polyps

Leiomyomas and polyps are growing tumours and thus produce significant plasma glycodelin levels. Uterine glycodelin flushings are elevated in patients with both polyps and leiomyomas. Elevated glycodelin levels in the follicular and peri-ovulatory period may impair fertilization and implantation.
From: Glycodelin levels in uterine flushings and in plasma of patients with leiomyomas and polyps: implications for implantation.

Endometrial polyps appear to be organized overgrowths of the uterine endometrium, although the precise mechanisms leading to their development are not clearly defined. The endometrial lining of the uterine cavity grows in response to estrogen and is architecturally restructured in response to progesterone. If the response to estrogen is excessive, either in the presence of unopposed estrogen (such as during periods of anovulation) or whenever the bioactivity of the circulating estrogen is increased (such as with increased numbers of estrogen receptors or with decreased metabolism of estrogen) overgrowth of the endometrium may occur. If these overgrowths organize and develop their own blood supply then they become polyps.

The mere presence of polypoid overgrowths in the uterine cavity may (at least theoretically) interfere with implantation and fertility. I have envisioned polyps as acting sort of like IUDs in the cavity, creating a hostile environment for embryo implantation. I remove endometrial polyps in women with reproductive problems and these women (anecdotally) seem to do remarkably well in subsequent fertility efforts. A well designed research project describing fertility outcome after treatment for different types of endometrial polyps would be valuable.

Endometrial polyps are not always benign. I removed one normal appearing endometrial polyp hysteroscopically and this was found to contain an endometrial adenocarcinoma (cancer) on pathology report. Therefore, in the presence of any atypical overgrowth of tissue it is always important to think about the possibility of cancer
From: Miscarriages - Causes and Treatments

Acupunture Update

Just a quick post to let you know that acupunture treatment went well and I had lots of points of pain in my abdomen that she treated. Overall the diagnosis is: spleen qi deficiency, damp accumulations, phlegm obstruction and blood deficiency. Nice eh?

She worked a lot on points to help dry things up, and being that she asked how I was doing, of course I cried. It was weird to have my sinuses drying even as I had just been crying.

I'm going to take this month off to work on the fibroid with herbs. I'll feel much better about things if I do (and chances are that if I don't I won't conceive anyway since my body is disrupted enough to start growing another fibroid). Keep your fingers crossed for me that it helps.

Fibroids and Pregnancy

Behavior of Leiomyoma during Pregnancy

Dr Walker's study of UAE and pregnancy

Fibroids During Pregnancy

Fibroids in Pregnancy

Fibroids in Pregnancy
scroll down the page to get to this section

If you join the uterinefibroids Yahoo Group there is more information available about fibroid degeneration and pain during pregnancy based on individuals experiences in the Links area.

Still thinking about that qi and what it might have had to do with this all

"Although invigorating the uterine blood can be risky during pregnancy, when blood stasis is present, if it isn't addressed and resolved, the fetus will abort."

"The herbal formula I prescribed for Christine is often used to treat endometriosis and uterine fibroids, and other manifestations of uterine blood stasis."

"[She] suffered from very severe PMS. About a week before her period was expected she became extremely depressed and irritable....Her menses were regular, coming every 30 - 32 days. She bled rather heavily, and the menstrual blood was dark red and clotty. She was always cold, especially her feet."

"During one visit, Claudia off-handedly told me that every month she experienced vision changes premenstrually. She had told her gynecologist and reproductive endocrinologist that her vision would dim and she saw floaters just before her period arrived, and they both told her it was insignificant. According to Chinese medicine, the liver, which governs the eyes and vision, also supplies blood to the uterus. This clue allowed me to hone in on another aspect of Claudia's menstrual disharmony. Although the liver qi had been rectified, the liver blood remained relatively vacuous and couldn't supply both the eyes and the uterus."

From: Immunologic, Autoimmune Factors, and Recurrent Miscarriage

Those things are my symptoms, my normal symptoms I have lived with for years.

I feel like there was something to how painful my breasts were that last weekend I felt pregnant. I think it was related to stagnation. My body didn't feel happy at all and while I know things like morning sickness also show that the body isn't happy there is something that tells me that my body was trying to protect itself instead of giving in to the pregnancy.

I like my acupuncturist but I think he's a little less practiced in fertility. I think a deeper understanding would be a help for me. I sent an email to Eastern Harmony Clinic to see if they know anyone to refer me to in Seattle. I don't see how any other treatment is going to work as just using progesterone last year made me feel so sick and I don't want to go through this again.

To someone who is wondering whether or not to have a myo

Lots of women get pg with fibroids in place, it is an elective procedure however so in part you get to decide when it is right for you. Some considerations I've noted about when it is a good time to have fibroid surgery:

• you feel like you have exhausted all other possible treatment options
  
• you are feeling pain and discomfort, even some of the time. This can include back pain, pelvic pain, leg pain, etc.
  
• you are having bleeding problems (really heavy periods, or periods that don't seem to stop -- this can lead to problems with anemia which can impair fertility and put you at risk for other health problems such as clotting)
  
• you have had trouble conceiving or have had miscarriage/s
  
• you are wanting to try hormonal fertility treatments and your fibroids are already a good size
  
• you are having difficulty urinating or are having to pee all the time or you are developing urinary tract infections
  
• you can't stand the thought of having fibroids inside of you and want to get rid of them
  
• you fibroids are compromising the interior space of the uterus
  

Since you are already dealing with TTC with one tube I can see that it doesn't feel like a straight shot decision for you at all. There is a risk of adhesions after any abdominal surgery, but whether or not these will cause problems is another question.

The surgery is a big deal in that it can be quite invasive and most of us haven't had that much physical trauma before. It is also one that you will recover from quickly. An abdominal myo is very similar to a c-section and loads of women have those operations every day.

Have you read What Your Doctor May Not Tell You About Fibroids yet? It is a super book that really helped me to feel empowered about my body and my fibroids. It describes in detail about the various procedure options and includes info about fertility success rates post-op.

To a woman wanting to try the natural route with a large fibroid...

I tried the natural route and had some success with acupuncture and chinese medicine. But, when I did finally get pregnant my fibroid doubled in size. You think you are uncomfortable now, just wait as 80% of fibroids will grow during pregnancy.

I really think you should have it out, as scary as that might seem. After they get larger than 4cm they have a hard time getting rid of them through alternative therapy, though I'm sure there are exceptions. It is only because you are already uncomfortable that I'm telling you to have a myo, not every woman with fibroids has ones large enough, or positioned in way that set them out on a bad footing for pregnancy and yours sounds like mine.

I had mine removed in November and it was the size of a grapefruit (ack!) It is a big relief to have the fibroid out of there. Just the psychological stress of managing this fibroid that was going to keep doing its thing was a big burden. When I thought about getting pregnant with it in place again I just about had a panic attack, it was really uncomfortable and mine didn't have any degeneration.

I wish they would give out MRIs more easily as I think if I had seen how it was really positioned I might have had the surgery sooner. My fibroid was located right up against, but not engaging with, the endometrium. I don't regret waiting though since my miscarriage experience helped prepare me mentally for the surgery.

Here are some quotes from Johanna Skilling's book Fibroids about how fibroids can contribute to infertility:

"If a fibroid causes a miscarriage it's more likely to happen in the first or second trimester; in fact, fibroids can cause miscarriage so early on, you migh not even realize you are pregnant. Later in pregnancy, fibroids tend to cause pain or preterm contractions rather than miscarriage"

"How can fibroids cause miscarriage?...either by distorting the uterine cavity or by altering the blood flow that would normally be needed to nourish the growing fetus."

"Fibroids can release chemicals called prostaglandins, the hormone that triggers pain...Prostaglandins can also induce contractions of smooth-muscle tissue"

"...the cells of a fibroid divide faster than the "normal" cells in your body...This rapid cell division can trigger a response from your immune system--sending the body's natural defenses to try to deal with the perceived invader. This reaction is bad news for another "alien" in your body -- your fertilized egg."

I'm going to start posting links to some of the postings I've found on other blogs by women who have had fibroids and myos and pregnancies, etc. It's amazing how many people there are.

Enough Already: I'm Never Right About A Damn Thing...

So Close: Natural Schmatural -- scroll down to Rachel's reply post.

Dirty Words

LaLa Blog-o-Rino

memage

Almost Faemist

Nancy's Blogger

The Road to Sleeplessness

Working on fertility and fibroid prevention post myo

I had acupuncture treatment for most of the year up until my surgery and I expect to start treatment again in the new year. Through my weekly appointments I learned a lot about symptoms and sensations and was amazed as my acupuncturist was able to move things around -- such as getting rid of a sore throat in seconds, dissipating heat and pain in my abdomen within minutes, adding heat to my lower back that lasted for days when I was feeling cold and watery with some hormonal disturbance related to my miscarriage.

I needed a break from medical care for a little while, with having retained tissue from my miscarriage I was so out of whack and I was starting to feel like a perennial patient -- like it was more normal to be unhealthy than healthy so I needed some time to just be me. Anyway, I've been noticing little symptoms of hormonal imbalance over the past couple weeks so I know that my body isn't "normal" yet. My basel temp has been a little high, I have pain associated with my gall bladder channel, I have light night sweats, vaginal dryness, acne, low back pain and my body is telling me not to eat sugar right now. I feel so bad that my body is struggling still but I'll continue to take care of myself and in January after I return from vacation I'll go see my acupuncturist again.

I just bought The Infertility Cure by Randine Lewis, a fertility expert who specializes in acupuncture and Chinese Medicine. It is so interesting to read, adding to my own experience with acupuncture treatment. Reading it I see more examples of symptoms of imbalance in my body, some of them part of the pattern of imbalance I have had over the course of my treatment (liver, kidney and spleen Qi stagnation and Yang Qi stagnation). While these things will interfere with conception when I'm ready to try to concieve again, they also are part of the pattern of imbalance that contributed to my fibroid formation. It only increases my resolve to make changes and adjustments to try to be as healthy as possible to try to counteract the pattern to try to prevent future fibroids from forming. I've already made changes since my fibroid was discovered, I'll just have to keep working equally as hard moving forward.

You think you have a plan...

When I was younger I thought I would start having children when I was 28 but then that year my partner had his vasectomy reversal. We thought we would wait until I was 30 or so before we'd start trying, then 2000 rolled around and his S/A wasn't good. We stopped using protection and nothing happened, but we weren't ready for it then anyway. Then there was 31, and 32, we'd be ready by then. Well I can't say I really felt ready when we started TTC in 2002, and only later did we find out that my body wasn't really ready yet either -- at the same time I was diagnosed with my fibroid I was told I had bacterial vaginosis. A few weeks later my naturopath told me that not only was I anemic but that I really needed to do something about it. This all in spite of regular cycles -- well at least my pituitary and ovaries still work. Then 2003 was all about research into fibroids and hormones -- and not having surgery and crying after a lot of doctor's appointments. 2004, it started out hopeless, then gradually things started to change. We had treatment planned and then we even got pg on our own -- what a surprise. This second half of the year has been about letting go, grieving, healing, changing, transformation, and recovery.

I'm 34 now and I'll be 35 in six months time. I wonder where 2005 will take me, but I'm sure that I can't possibly predict.

Six Weeks -- Feeling Pretty Fine

I haven't had my laptop so I haven't been able to upload any photos in a week. I'll have some soon of my healing belly. I don't think you can see much change on the outside but I can definately feel the difference on the inside. I'm a lot less sore now and I have more energy.

My cramps were awful last week, I thought I was going to die and I had spotting which isn't normal for me. My period came last week, over a week late, and it wasn't normal. I had more hemorrhaging for several days and felt very light-headed. It doesn't even take that much blood loss for me to feel this way. I was anemic to start with, something I've been working on since my surgery by taking iron supplements. I think my uterus might have had a hard time contracting properly and maybe it was still adjusting to all the recent changes.

I looks like things are getting back into order though, all biological signs are A-OK now. My incision is still sensitive but I don't have to wear the granny knickers anymore and I can comfortably sleep on my belly at night. Wednesday morning my body told me it was time to exercise again. I've been aching for the first time since my surgery, the kind of aches you get when you don't exercise for a while. I've been trying to pick it up and do more physical activity including a little jogging down the street and push-ups.

We babysat my 26 month old nephew at the beginning of the week and the kid had us running around for hours. My partner says that he's not sure he wants one now, that his life will be certainly over if he has to do that every night. I don't think he is serious, he would love a baby if we had one and be awesome about it. I told him we can get an au pair, though I don't know that we really would do that. We'll figure it out when the time comes.

My partner also noticed the other day that for the first time in a couple years there is this lightness to my person, some weight being lifted. I think it is from the fibroid mostly. It was a big psychological burden on me to know that I wasn't well and that I had to manage a condition that may or may not affect my fertility. My partner said that now I know I can get pregnant and now that the fibroid is gone things are looking a lot easier. Let's hope so.

It will be another 8 weeks or so until we're able to start trying to conceive. I'll be away on vacation for part of that time and then I'm going to try to take some art classes in the new year to help keep my mind off of it all.

4+ Weeks Post Myo

Another report on how I'm recovering -- hopefully this helps people who are considering the procedure.

I retured to work part-time one week ago. I got tired and sore by the afternoon and was sure to go home. During the rest of the week I noticed that day by day I had more stamina and less pain -- it seems that the pain picks up if my body needs a rest. I was able to work almost a full day on Friday without any problem and then my uterus where I had the incision started aching so I headed home. In contrast, my first shopping trip 8 days post-op I felt lightheaded and really tired after a couple hours out of the house. My second shopping trip 18 days post op I was out for a few hours on my own and got really tired and flushed feeling -- that's when you know you need to head home.

Saturday I took it easy, just doing light housework and cooking plus lots of knitting. Yesterday I went shopping for several hours and it was only after I tried on a bunch of different pants (after having been out for some time) that I started feeling achy. I handed over the items I was going to purchase to my partner to carry and then went home. I was feeling a little tired but I wanted to get a tree for Christmas so I drove out to do that and just had the staff carry and load it for me in to the car. I took a rest when I got home and finished stringing popcorn for the tree and then after making dinner I decorated the tree and vacuumed downstairs (I had my partner bring the vacuum downstairs for me).

Every day I'm feeling more and more myself. The pain from the adhesions behind my incision in my skin seem to be breaking up a little bit and I think my skin might be adapting/growing to that situation as well. I still haven't had my period but hopefully this week. When I had my d&c for my miscarriage in July it took 50 days to get my period, I think my body tends to take it slowly and get everything back in alignment before it continues.

I had sex once so far and it wasn't bad at all -- we did it spooning, on our sides which takes all pressure off of my belly. The only reason we've only had the one go is because our sleep schedules are different so I'm tired when he's just getting interested (sound familiar anyone?).

14+ days post op

So I had my post-op visit yesterday morning and everything was good, she said I looked great. She said removing my retained POC was very difficult because of the fibroid and that there was no way for my uterus to expel the tissue on its own based on how the fibroid was positioned filling the interior of the uterus. So my prospects for a normal vaginal delivery were probably slim to none since my uterus couldn't contract well, or at least I would have had a complicated delivery. I was sooooo uncomfortable when I was pg with the rapid fibroid growth and the pregnancy having to grow off to the side because that was the only way my uterus would move, next time should be a lot better.

My doc also said that my uterus will be enlarged for a while, shrinking back some but that it would never be the size of a normal unpregnant uterus since the fibroid made the muscle wall have to grow larger. Maybe I'll be extra fertile now though, the interior of my uterus will be one vast space with lots of room for an embryo to settle in.

She said I could remove the steri strips in the shower or bath, I just pulled them off carefully when they were dry, the adhesive was already starting to go. Uncovering the incision though made it burn more, I think this is partly due to my nerves regrowing right now --
they have to cut through some in the skin there and they may or may
not grow back completely. I had to take the 600mg ibuprofen and after an hour that wasn't helping so I took a percocet and it really helped take the edge off the pain. My father said he had that same burning sensation as he healed from his triple by-pass a few years ago. The incision looks great and I don't think that it will show that much at all in a few months.



She agreed that starting trying to conceive (TTC) again in February
sounded like a good idea and that we should try for a few months on
our own before going back for any more fertility consultations. After having way too much medical attention over the past 6 months (due mostly to the pregnancy/miscarriage) and way, way too many blood draws for my liking, now I'm in a holding pattern and it feels so strange to be told that I'm healthy and back on my own. Not that I liked being not well but you do sort of get adapted to fitting in the medical care when things go wrong. Yeah to be healthy again though!

Oh and I guess it was around 11 days post op that I started to feel
more myself and I've been less fatigued and able to do more around
the house, tidying up, cooking, light cleaning, etc.

What happens when you are having a myo

I'm on bed rest one week and two days post abdominal myo and I'm feeling great. Tired but healing quickly. Since you were curious about the before and after...

Pre-op consult -- they take your blood pressure, weight, check your blood to make sure you aren't anemic and get your blood type if they don't have it on record. You meet with your doc and ask last minute questions and sign a few forms. Sometime you will get to meet with the anesthesiologist at this time but I didn't. They give you instructions on when to stop eating and drinking prior to surgery.

Day of surgery -- check in 2 hours beforehand. I brought knitting to keep my hands busy and mind calm. The hospital seems to make you keep signing forms that say the same thing (whatever). My surgery was delayed by more than an hour so we went home for an hour and I did some last minute housecleaning.

When it is your turn they take you into an area with a gurney and give you a hospital gown to change into. My partner was allowed to be with me until they were ready to take me into the operating room (my doc said -- be sure to ask yours ahead of time about this). They hook you up to an IV and the anesthesiologist asks you questions about your previous experiences with anaesthesia. You have the option of asking for an epidural with sedation if you prefer, it is up to you and the anesthesiologist. I did the general and it was fine. They take your bag and you say goodbye and then they wheel you in to a freezing cold room. They hook you up to a blood pressure cuff and the oxygen monitor (little finger cuff) and then put a blanket over you. The anesthesiologist puts a mask on your face and tells you to breathe in oxygen and the next thing you know you are waking up in recovery.

They keep taking your blood pressure alot post-op and you are groggy and have a hard time opening your eyes. You are hooked up to a PCA, where you are able to dose yourself with painkillers as needed -- don't hold back because staying on top of the pain at first will help you a lot. After about an hour they wheel you to your room. They put some pressure stocking on your legs and some cuffs that compress/decompress automatically to help prevent blood clots. My wound was covered with a bandage so I couldn't see the incision -- thankfully. I had a catheter in for not even a full day, but know that the first pee can be really difficult. The nurse gave me warm water to run over my vagina while on the toilet and that helped get things moving. I recommend drinking unsweetened grape or cranberry juice for a week afterwards to help ward off a urinary tract infection -- it helps prevent bacteria from adhering to the lining of your bladder, etc.

They will have you up and walking less than a day after surgery, take it slow and roll onto your side slightly, then drop your legs off the bed and use those side muscles to lift you up. The first few times you get up will be very awkward and painful. Stay on top of the pain meds and breathe a lot and you will do fine. The pain isn't excruciating, I ranked the worst at 5 on a scale of 1-10 but it was mostly around 3-4.

And then do as I've been advised from other post myo gals -- take it easy and don't push yourself. Even though my incision looks great I can't see my uterus and it has a lot more healing to do than my skin.

Extreme Makeover: Uterus Edition

"We converted this cramped two bedroom bungalow into a special open floor layout and removed some earlier renovations which were gettingin the way…"

So, I'm home from the hospital as of yesterday afternoon and I'm well on my way to a full recovery. I'm really tired still and reading is kind of hard, I just start falling asleep so I'm going to make this post and then you'll probably hear more from me later in the week.

My entire surgical team was comprised of women. From the two REs and the anesthesiologist to the nursing team – how very cool to know that competent women were working hard to help heal me. I wore my purple fuzzy socks of courage and even got compliments on them from the nurses. I opted for the general anesthesia and other than a sore throat on Saturday it was totally fine.

It took as long to remove the remaining tissue from my miscarriage as it did to remove my fibroid, but already my bleeding has slowed. I had been bleeding for the 4 weeks prior to my surgery and was a little anemic as a result. They didn't need to give me a transfusion and they commented on how little blood was lost – I went for an acupuncture treatment the day before and that can help lessen blood loss. One of the REs said she was a firm believer in acupuncture and wasn't surprised that it would help out.

The fibroid made it impossible to use the hysteroscope to view the retained tissue but they believe they got it all out of there. My fibroid was described as being the size of a grapefruit, and was removed via a single incision about 3 or so inches long. It was growing right up against the endometrium, but it was not engaged withthe endometrium – what a blessing. So, while they had to cut all the way through the muscle wall to get it out there was no disturbance of the interior of my uterus so I've got the most surface area possible to help catch fertilized eggs.

Over the course of the two procedures my bladder was manipulated and traumatized quite a bit. Between that and the catheter the most difficult part so far has been trying to urinate; I have to sit for along time and try to relax and let got of any part I can think of. I also had blood tinged urine but the doctors said it was as a resultof the trauma. I'm drinking cranberry juice and lots of water and am under strict orders to urinate every 2 hours. They weren't sure if my bladder was enlarged from the fibroid or now, or if I'm just one of those women who can't empty her bladder completely (it happens they say) but we sure as heck don't want me to have a bladder infection so I'm going to stay on top of it.

My incision on my swollen belly is a good 5 inches long, I imagine that it will decrease over time. The gum, the walking, the sleeping mask, ear plugs, robe, slippers, granny knickers and my own pads all came in handy. The doctors and nursing staff were amazed at how well prepared I was for the hospital – I gave the fibroid ladies all the credit. They are truly the best group of women on the web.

My myomectomy scar - Day 3


Oh, and the baby making department… my RE said that the way the fibroid was positioned that she didn't think that I would have beenable to carry to term even if we didn't have a blighted ovum and that she expected that I would have continued having miscarriages. She thinks we have a great chance now and said we could try as soon as two months from now, though I think we will wait until February is over.

My partner is exhausted; I think the emotional stress of the weekend has gotten to him. He held me in the hallway last night and hugged me and said he felt so relieved that it was all done now. Poor guy; he was nice and helped watch over me the first hours after my surgery on Friday, massaging my feet and making sure they got me situated into a good room.

So, I'm feeling all right and my abs aren't too sore – they didn't clamp me, just pushed and pulled them a bit. Other than the incision site being sore and my uterus as well in the two spots they worked the rest of my body feels fine – I'm just incredible tired.

I can't believe that I'm through with the worst of it and now I've just got to heal. No regrets on my part for delaying the surgery, I know it was the right thing for me. Thank you for your prayers on Friday – I felt like I was in a warm cloud, so relaxed and comforted the entire time.

[See also: Preparing for surgery posts]

What should I do?

So I still have retained POC (products of conception) from my miscarriage in July. It is likely that my fibroid has contributed to this situation by not allowing my uterus to contract as well as it might (8x10cm intramural fibroid, uterus wrapped around fibroid). My RE wants to go in with a hysteroscope to aid in the removal of the 2x3cm piece of tissue in my endometrium -- the fibroid doesn't allow for a very clear image of what is there.

She mentioned that while I'm under she could remove my fibroid as well. It isn't the largest fibroid that she's operated on, but it isn't small either. She thinks that if I have the surgery done now I should be all right to travel to Ecuador for Christmas -- about 6 weeks post-op -- to go on a birding tour.

My fibroid hasn't shrunk at all since August, though it is smaller than the largest measurement right before my d&c of 9x11x11cm or so. On the day I got my BFP it measured 6.5x7 -- so it is now twice as large and I'm feeling it everyday.

Tthis RE does surgery twice a week only and I like her, she's been practicing since 1983 and does on average one myo a month -- but she's regularly doing reproductive surgeries. I'm feeling pretty good about her and she said that she would consider my desire for a vaginal birth as she did the surgery.

If you were going to be put under right now for another procedure would you opt to have your large fibroid removed as well?

Between a fibroid and a hard place

I've been on this long journey over the past 2 1/2 years. I went from not being ready to get pregnant, panicked about the thought of it, to where I am today which is still recovering emotionally from the loss of my first pregnancy.

Along the way it hasn't been easy, I found out I have a large tumor in my uterus which is called a fibroid. It is benign but they don't really go away on their own. It may be compromising my fertility but the only treatment offered to me was to have major abdominal surgery to have it out which could cause pelvic adhesions which could really compromise my fertility. I'm damned if I do and I'm damned if I don't (I'm beginning to notice that theme in my life...hmmmm...)

My fibroid and I are having our second anniversary this week since we first met. Maybe I'll bake a cake. I have not named my fibroid though I know women who have. And I only have the one, I'm monogamous when it comes to uterine fibroids.

At any rate I've done a lot of research into male and female fertility, hormones, supplements, diet, lifestyle, and a ton about fibroids and other gynecological conditions and I'd like to share with you what I have learned. I do think there is more than one way to skin this cat and I hope you find my research worthwhile.

(This was my very first post here.)

I finally got my period, the first one since my miscarriage in July, this past Saturday (Yeah! Time for a party!). My beta was still up last Friday, I hope to have another draw today to see if it has gone down more.

In the meantime I've noticed that my fibroid has gotten dramatically smaller over the past couple weeks (even more cause for celebration!) I've got a call into the doc to see if I can get another u/s to check on it as I'm starting up on my chinese herbs again and I want to know what we're working with. We'll start trying on the baby-making in October to give some time to treat my fibroid with herbs and acupuncture.

Now if this extra fat around my middle would just go away then I would be back to normal....