Thursday, June 23, 2005

Back from acupuncture



I went over and met with two women acupuncturists today who both took case notes and my pulse. Obviously we had a LOT of information to go over since I've been there and back over the past three years.

They were a bit amazed that we hadn't tried any fertility meds, not because they thought we ought to have but just because I had been seeing REs (4 total) and all I've had them do is provide consult, an HSG, some bloodwork, 2 d&cs and a myo.

After going over the here and now miscarriage stuff, then into my pregnancy a bit and then over my cycle history and the fibroid stuff finally we got to do some needlework. I was like a porcupine today with them all up and down my legs, on my hands and feet and across my belly. Two particularly painful areas were the palace of the uterus (down low near my bikini line) and my girdle (aka belt) meridian. The needles were fine but some of the movement they were trying to get to happen was fairly painful, not acute but really sore. Evidently my kidney channel was depleted, my lung qi was being drawn on heavily and it was depleted (channel associated with grief go figure) and my heart channel had some stuff as well. My spleen/stomach channel was doing its almost usual weirdness as well and of course, liver qi stagnation.

I feel much better now, not so entrapped by the changes my body has been going through. I'm going to sort out next steps with my REs office in the morning if the sac doesn't move out by tonight and then we'll see about medical management or herbs to try to move things. I'll have another acupuncture appointment next Thursday with them to follow up on getting my body out of this miscarriage phase and then we can start focusing on building me up again.

It sounds like a good plan to me.
In response to Anna's post about the neighbors...

Doesn't all this infertility secrecy, hurt and frustration (sometimes pain and grief too) make you realize how many people are going through bad things. Since my loss last year I now try to remember that around me are people who are hurting because they lost their father, or someone in their family is sick or things aren't going well in their life right now. There are some things that you can't say though you wish you could wear a badge sometimes and have people be nicer, more understanding.

Thanks for checking in on me.
Headache is just about gone today.

I went grocery shopping after work yesterday and did a little instinctive shopping, I see what I start craving as I start walking by the food. I offer my body things like apples, strawberries, kale, potatoes, fish, meat, broth and last night it told me to buy a pineapple, more grapes, beef broth some red meat and red cabbage (not spinach for certain). I bought other things for my partner off of our regular shopping list. When I got home I washed and ate a bunch of grapes and then cut up the pinapple which was very ripe. My headache started to dissipate after the pineapple, the bromelain it contains is a natural anti-inflammatory. Then I made beef noodle soup for myself and had it along with a cup of my dong quai/peony tea. My head felt a bit better after that as well.

When I woke up this morning I could still feel something, congestion or heat, but the killer frontal headache is gone for the most part.

I got a call back from the acupuncturist this morning. She had a cancellation so I'm going in to see her at 1pm and see if we might be able to work together. Wish me luck.

Wednesday, June 22, 2005

This evening I'm feeling frustrated, just a little bit but it's there. How did this happen to me again? How is it that I was so close and then the whole project got called off. Why wasn't I consulted? I don't feel like I lost a baby, I feel like I lost a pregnancy. Next time, if I can sort it out so that we don't lose it I imagine people coming up and asking me "oh, is it your first?" and I will answer "No, it is my third pregnancy and no I don't have any children."

When I'm coming to and from the house I think of my neighbors and how they must perceive our life as this childless couple. Little do they know what has happened in their midst. Yet again.

I wish I could be even trying again but I'm still in the midst of getting rid of the remainder of this loss (still haven't passed the tissue -- I think I'm going to have to try drugs this weekend).

What I felt during my brief pregnancy

It was probably more than liver qi stagnation but here were things that I noticed:

SP6 kept throbbing -- it didn't bother me last year

Breast pain that felt like I was having knives stabbed into me for days. This pain surfaced at a new greater level over Memorial Day weekend after which, a couple days later, my symptoms backed off and I had the faintest amount of spotting one day. I think that weekend was when things tipped and my body fought back against the disruption the pregnancy was causing.

Cold feet -- they were as cold in the evenings as they ever were. It didn't feel right to me.

Sweating at night

I had and still have this odd sensation of pressure above my navel.

I emailed Eastern Harmony yesterday and got a referral to someone who has studied with Randine in Seattle. I'm trying to get an appointment to see if we can't do more to rectify my imbalances. I like my acupuncturist but he doesn't specialize in infertility and I've had to suggest that we try herbs or different approaches a bunch of times. He's a little too needle work focused.

----
Here are my general symptoms we've been treating:

Uterine fibroid -- associated with blood stagnation and liver qi stagnation

I was anemic for years (just enough to have it not be a problem for my docs evidently) and this gave me other symptoms such as phlegm issues (coughing a lot, especially after meals), getting sick a lot (so much so that my friends were worried for me)

PMS symptoms starting right after I ovulated including irritibility, depression and breast pain including fibrocystic breasts (this was somewhat improved based on naturopathic and TCM diet changes and tx)

Night sweats during LP

Heavy periods that last 6-7 days

Cold feet at night, cold hands

Constipation

Stress makes me lose my appetite and thirst

Fatigue generally, depressed somewhat

Basel temps tend to lull a bit mid LP (horse pattern as per that article you/I recently posted); jaggy temps during the cycle fairly frequently

Tend to shed hair during LP and also since my surgery also during follicular phase

It's hard to be totally objective since I feel like crap (physically) right now but that's most of it.
I've had headaches since last Saturday, I think it is due to the blood loss, low blood pressure and also some qi disturbances. I'm still bleeding but my body was craving the dong quai herb mix my acupuncturist gave me and so I had some this morning. I drank the entire cup which is unusual for me, I usually only have half a cup of anything. I'm still craving more, though it is a bit of a blood thinner so I'm trying to be conservative. I'm also coughing, I think it is related to being a bit blood deficient as this was a chronic sypmtom I had while I had anemia for years (it's been better since I supplement regularly but I lost a lot of blood last weekend). My hands and feet hurt at night and when I wake up in the morning.

I emailed to the Eastern Harmony clinic and asked for a referral to someone who had trained with Randine Lewis, author of The Infertility Cure, and they sent me to this clinic here in Seattle.

They are pretty close to my office and in the same building as the dentist I go to so that would be convenient. I like my acpuncturist but I don't feel like we have made enough ground in the almost 18 months that I've seen him. Granted that was peppered with my getting pregnant and have a miscarriage and then the surgery and all but I think that I've still got too many old patterns sitting tight. I've beenthe one to suggest different approaches to my issues and I think we've learned more from those times than from anything else (that's just my opinion though).

I still haven't passed the sac. I'm going to do some yoga and qigong later this afternoon to try to help my body move things along.

Tuesday, June 21, 2005

Still thinking about that qi and what it might have had to do with this all

"Although invigorating the uterine blood can be risky during pregnancy, when blood stasis is present, if it isn't addressed and resolved, the fetus will abort."

"The herbal formula I prescribed for Christine is often used to treat endometriosis and uterine fibroids, and other manifestations of uterine blood stasis."

"[She] suffered from very severe PMS. About a week before her period was expected she became extremely depressed and irritable....Her menses were regular, coming every 30 - 32 days. She bled rather heavily, and the menstrual blood was dark red and clotty. She was always cold, especially her feet."

"During one visit, Claudia off-handedly told me that every month she experienced vision changes premenstrually. She had told her gynecologist and reproductive endocrinologist that her vision would dim and she saw floaters just before her period arrived, and they both told her it was insignificant. According to Chinese medicine, the liver, which governs the eyes and vision, also supplies blood to the uterus. This clue allowed me to hone in on another aspect of Claudia's menstrual disharmony. Although the liver qi had been rectified, the liver blood remained relatively vacuous and couldn't supply both the eyes and the uterus."

From: Immunologic, Autoimmune Factors, and Recurrent Miscarriage

Those things are my symptoms, my normal symptoms I have lived with for years.

I feel like there was something to how painful my breasts were that last weekend I felt pregnant. I think it was related to stagnation. My body didn't feel happy at all and while I know things like morning sickness also show that the body isn't happy there is something that tells me that my body was trying to protect itself instead of giving in to the pregnancy.

I like my acupuncturist but I think he's a little less practiced in fertility. I think a deeper understanding would be a help for me. I sent an email to Eastern Harmony Clinic to see if they know anyone to refer me to in Seattle. I don't see how any other treatment is going to work as just using progesterone last year made me feel so sick and I don't want to go through this again.
Still working on it

My ultrasound this morning showed that the gestational sac has moved down towards the area of the cervix but it has not passed yet. It still showed up as a dark blog on the screen so it still is fluid filled, though that doesn't have anything to do with it being still in there.

The nurse checked my cervix and boy did having that speculum opened feel like a treat. Everything is a little more sensitive down there right now, even the cotton swab she used to move blood away from the cervix opening was intense and ouchy.

My doctor, the nurse and I agreed that avoiding a d&c was worthwhile (see there is a reason I named my blog that) so I will just have to let my body do the remaining work to move the remaining tissue out of me which should happen within a few days but maybe a little longer. We'll reevaluate later on this week if nothing has happened by the end of day Thursday.

My head is foggy and my body still feels weird, unresolved as it was. Not as hormonally hung up as last time though but somewhere in between. I've realized that the hormonal changes your body goes through for a miscarriage somewhat impair the analytical part of the brain. Oh well, if I can just push through and focus on design work and not on any more proposals or client meetings I should be able to make it through the week.
It's 1:15 am and I can't sleep. I had a nap earlier this evening because I felt sleepy and heavy and then I woke up. I've been surfing around and not working on this proposal that is still hanging over my head.

I wish I felt tired. I feel like an insomniac.

I also wanted to thank you all for coming and lurking and posting and sending me prayers and good thoughts. It helps to make this seem less of a lonely time. I wish it was because we were all celebrating instead of worrying over this non-event.

Today I kept thinking of this song by Sarah McLachlan,"Out of the Shadows". It's from her first album. It's a pretty song but a bit moody. Reading the lyrics they hover around what I'm feeling, but I'm not going to let myself be depressed. Well okay a little. But not in a big self-indulgent way. Just a measured amount.

Monday, June 20, 2005

I'm going in for an ultrasound in the morning. I don't believe I passed any tissue, the so-called Products of Conception, over the weekend. When I called the nurse she wanted me to come in sooner rather than later. From last time I know that you can have retained tissue for a while without any problem. From other women who have gone through miscarriage I know that there is a real risk of infection. They said they might want to do a procedure tomorrow. I so don't want that. There is always the possibility of using medications to try to bring on contractions again, but who knows how long that will take. It's hard to be discreet about these things when you are dealing with nature and nature takes its own good time.

I spoke to my mother today and told her about it. First I sent her an email after she sent me a nagging one about not calling for Father's Day. I just was blunt about it, no details or anything. We talked and she was okay about it. I don't know why she was this time and not last time. Maybe it is because I've already been there and she knows it. Maybe because she has already seen me wounded. I told her maybe third time's a charm. She said that is what happened for her. I wish we didn't have so much in common.

If I can get my miscarriage to be resolved I could try to go visit her this weekend. The next two weekends after that we are busy and then it is the middle of July. She's going to start her radiation therapy and she would like to see me while she still has energy. Though isn't it ironic that I won't have any. I can't win at this game.

Sunday, June 19, 2005

I'm so beat. It's like the life has been drained out of me. I woke up today at 5am to a flooding sensation and then went through hours of passing large clots and having awful pains. I still haven't passed any tissue though (argh!)

I was bleeding so much that in spite of using a cold pack and taking 1000mg of vitamin C there was no stemming the flow. I talked to my partner about how we would know if I needed to go to the hospital, it was pretty scary for a while. I took a shower around 8am (?) and it looks like that shower scene from the movie Psycho for a while. After a while longer sitting up with intense pains I started getting sleepy and so I went upstairs and fell asleep for several hours. When I awoke the bleeding was less. I sat on the couch all day and knitted.

This evening we went over to see my niece and nephew as they are going out of town for a couple of weeks. It was a good break from all the torment of the weekend but I'm absolutely wiped now.

I've got some proposals due for work that I can't get around so I'll just have to push on through and then make up with more rest and shorter days during the week.

It's been such a different experience this time around, I think last time was punctuated by needing an abortion (d&c) to get rid of the failed pregnancy while my hormones were still high and that was immensely difficult for my body to deal with. This time things waned and while I'm sad a bit it's much more okay, I can manage.

I didn't call my father for Father's Day though. Last year I called him on Father's Day to tell him that he was going to be a grandpa and then that was dashed a few weeks later. I was feeling so drained that I knew that I would have to say something of why (or at least I would want to) and I just couldn't bear to pass on that sadness today. Not on this same freaking holiday.

We've talked some about when we will try again. I'm feeling like August might be a good time, give my body a chance to recover hormonally. We'll see how it goes in the coming weeks.

Saturday, June 18, 2005

It started finally. I woke up around 4:30 this morning to some cramping and when I went to the bathroom I was bleeding. The cramps got stronger after that so I couldn't go back to sleep so I'm up watching a moving on cable with my hot water bottle against my lower back.

I have my last drawing class of the session today but I don't think I will be going. It's not a good time with these cramps all.

At least it is the weekend.

Friday, June 17, 2005

In spite of my aching ovaries we went out for a nice dinner together last night. My partner ordered a fabulous bottle of red wine, 1998 vintage from Europe (he loves '98 and '99 from Europe as they were noted as great years for growing grapes). The wine helped, getting a little tipsy helped.

I was so tired by the end of the day yesterday, it's be a long week. I had work to do last night but I couldn't do it so I just made do today.

My spotting has progressed some, it reminds me more of what you get after the peak of your period. Still there is more stuff in there than my lining and that will have to come out sooner or later. I felt bad this morning so I called in sick and told them I had food poisoning. Whatever. I've been working from home but so far nothing exciting happening on the miscarriage end of things. Maybe soon, over the weekend.

I was just thinking that for all the time I said "Please God. Please God" it didn't work. I've had to work so hard to get pregnant and then I lose another one. My partner did get me pregnant twice within a year period. And the third cycle since our last pregnancy and my surgery. That's not too bad right? We should have hope.

A bunch of my infertile and miscarriage buddies have just gotten pregnant recently, I'm a tiny bit jealous but I'm also so excited for them. They too have worked hard and waited a long time for their tiny heartbeats. Hopefully I'll be pregnant again soon enough.

I got a letter in the mail from my RE's office yesterday; she's leaving the clinic. That's 3 for 3 RE's that I've seen and they all left that practice. They do excellent work. During my d&c last July one nurse mentioned that the hospital administration was the issue. Too bad and sad because people really need good help and they were all excellent. I would never go to the group that had formerly been at the University of Washington so let's just hope that we can do this on our own. Again, so far so good right?

Thursday, June 16, 2005

Wednesday, June 15, 2005

Slow slow slow.

I did some qigong again last night after nothing much happened yesterday and even the spotting was slow. Spotting picked up right away after that. Still slow.

This morning I started stimulating some of the acupoints that are forbidden during pregnancy. A couple hours later I had a little more spotting with a touch of pink.

Now I feel still a bit blocked. I want thing to flow. I'll have to do some more qigong.

I have a meeting tonight but I think I will cancel so I can deal with this instead. It's a reasonable excuse, no? Well, but the excuse I will give is that I am sick. I'm not actually, but I don't feel well. I feel ick and stuck and not like dealing with an evening meeting.

Tuesday, June 14, 2005

Nothing much to report. Pretty consistent brown spotting now, cramping on and off but not very active cramps yet. They slacked off a bit yesterday but then picked up again right as I was going to bed but I was able to sleep through unaided.

People online have been so nice and supportive. Some of them are so sad for me that it makes me get teary. I don't feel that bad, I'm a bit more sensitive but I'm also feeling a bit quiet about it. It's very different this time.

I was pregnant and it grew -- my breasts, belly, nausea and peeing -- then it started to decline and it's almost the same but backwards -- smaller breasts, smaller belly, no nausea and regular peeing. It's weird but having had two losses diagnosed around the same time in my pregnancy, it starts to tweak you sense of reality a bit. Pregnancy for me is something that begins and ends, but not with a baby. It's just a weird uncomfortable hormonal routine and then it goes away. I wonder how I will feel if I ever get past the first trimester.

Who are those people who get pregnant and go on to have babies the first shot? That used to be how I thought it went but not really anymore. I expect something to go wrong. Those people must be a different species than I.

Monday, June 13, 2005

I just called and cancelled my scan. The nurse Debbie at the RE clinic I go to said that was fine and she understood. I told her that I would wait a week to see if things resolve on their own and then we could decide if we need to do a scan or bloodwork or anything.

My partner dropped me off at the office on the way to his consulting gig. That was nice of him. I'll have to take the bus home (or a taxi) but today has been pretty uneventful.

By the way, I really don't think at the end of the day that my liver qi stagnation had anything to do with my loss. I think something just went wonky with it. Maybe it was the delayed ovulation, maybe late implantation. Someone else I know had a beta level at 350 or something on CD14 and while I know that beta levels are all over the place for me it might just be a sign that something wasn't right. Maybe it was because I waited until CD 8 to supplement my progesterone. Maybe it was just messed up DNA.

I'll do some more qigong when I go home this evening to see if that will move things along. I can't remember if I mentioned it here (I must have) but in October when I went to a health resort with my friend and we first tried qigong, several hours later I passed a chunk of my retained tissue that how I know that it can move the immovable.

We are climbing Jacob's ladder,
We are climbing Jacob's ladder,
Higher, higher.
I think this is going to be easier this time around. My hormones have been dropping I believe for the past two weeks so it won't be such a dramatic dive as the d&c caused last time. I'm thankful for small blessings.

I'm still a bit crampy at work, but mostly it is like bad menstrual cramps. It isn't the kind of cramps that take your breath away. They still might come, usually it is when the cervix starts to dialiate that you feel those and some nausea (it would happen when I was passing clots from heavy menstrual bleeding as well).

I feel a little spacey and tired and I have a bit of a headache. In the center of my head. Maybe it is my hypothalmus or something getting adjusted.
Cramps, cramps and more cramps

The cramps started yesterday evening with increased spotting. Still nothing that dramatic, no bleeding yet. I slept with a hot water bottle to help alleviate some of the discomfort. I feel a bit relieved that things appear to be moving along on their own though dealing with the bad pain and bleeding which is almost inevitably in my future during a busy work week when we are short staffed and have numerous deadlines isn't much fun.

I'm sipping passionflower tea this morning, it's a nerve tonic and hopefully it will help calm the cramping a bit so I can function at work. I've been trying to figure out which is better to drive to work or to take the bus. They take almost the same amount of time but one I have control over and the other I don't though if I take the bus I can always take a taxi home if I don't feel like driving. Blah.

Sunday, June 12, 2005

I had faint spotting last night. That and some vague cramping that I could feel in my lower back and just all over my abdomen. Nothing happened over night and this morning there isn't more spotting but I expect to start bleeding sooner rather than later and if so I'm a bit relieved. That would be a lot easier than last time.

Yesterday I started thinking more about whether or not my liver qi stagnation and depleted kidney yang could have impacted my pregnancy. It was the fact that my breasts started hurting again that suddenly I realized that my liver qi stagnation was acting up yesterday since I really didn't feel more pregnant; it was likely caused by the emotional trauma of Wednesday's scan. What if the dagger feeling two weeks ago was related to my liver qi stagnation as well? Granted the majority of miscarriages are due to genetic problems with the embryo but what if the qi issue had something to do with it. We won't ever know but I did find some interesting mentions about it.

The next three quotes are from Chinese Medicine and Infertility; Ancient Solutions for the Modern Couple

"Infertility due to Liver Qi Stagnation manifests mostly in women and is a frequent cause of unexplained infertility. This is because this type of Liver stagnation effects the blood flow in the pelvic cavity. Acupuncture at the right time in the menstrual cycle, in conjunction with an herbal formula and some counseling, is effective in dealing with this issue. However, because of the often long standing nature of this condition resolution and the restoration of balance may take several months of treatment. In the final analysis it really depends on each individual's specific symptoms and circumstances. Despite the amount of time involved, the resulting pregnancy is a more than welcome reward along with the added benefit of emotional clarity that arrives when the Liver organ/meridian is less toxic (stagnated)."

"Dysfunctional family factors also play a major role in the upset Liver, and may cause the condition to exist for quite some time." [oh yeah, I've got this one nailed]

"In oriental medicine we say that all chronic imbalances effect the Kidney organ/meridian network. What this means is that if a person has a weak constitution i.e., is pale, feels cold is undernourished, etc., then this is a result of either prenatal (genetic) influences and or a lifetime of habits and illnesses." [I was getting sick so regularly that my friends were all concerned. From colds to flu to bronchitis I would get sick every 6 weeks or so. With the lifestyle changes I've made this is no longer the case, I still get sick but definately not as frequently]

Here are some other references that piqued my interest:

"in TCM it is said that the Blood nourishes, the Qi protects, and the Kidney Qi holds the fetus."

"In TCM theory, the liver ‘stores blood’. The liver is the organ most closely related to our emotions. Good emotional balance comes from the smooth flow of liver Qi, and the normal flow of liver Qi depends on sufficient blood nourishment."
Alternative Woman's Health - A Look at Traditional Chinese Medicine

If there is itching of the nipples, this is stasis heat in the liver channel
A Discussion on the Diagnosis and Treatment of Infertility

"In addition to giving herbs for infertility problems, traditional Chinese medicine recommends herbal formulas for such problems associated with pregnancy as morning sickness, threatened miscarriage, and postpartum depression. One well-known formula, recommended to be taken three to six months before attempting conception, is called "The Rock on Tai Mountain Decoction."

The formula is intended to build up both the woman's qi, or life energy, and her blood. In Chinese medicine it is thought that the mother's blood nourishes, the qi protects, and the qi in the kidneys holds the fetus. Chinese practitioners use acupuncture to assist conception by clearing the stagnation of qi in the liver; to prevent miscarriage by conserving qi in the kidney; and to induce labor."

Pregnancy Treatments

I've found little references here and there that one can continue using dong quai in pregancy to continue to help with liver qi stagnation issues.

Unfortunately my acupuncturist is away for a month and won't be back for another two weeks. In the meantime though I'm going to keep doing my qigong since that seems to be helping.