How My Mom's Doing

I realized that I haven't posted much about my mother and thought I would give you an update on how she is doing post breast cancer.

As you might recall she was diagnosed finally with breast cancer in May of last year, a couple days after I found out I was pregnant. She had a lumpectomy at the beginning of June, where they also removed a lymph node in her breast/armpit area. The cancer hadn't spread at all and it was small so her prognosis was and continues to be very good. As with my abdominal surgery, small nerves were cut in the skin, though for her it made her armpit numb.

Over the summer she underwent daily radiation treatment in White Plains. They had given her two little freckle sized tattoos that the radiation technicians (is that the right term?) used to line up the equipment to focus the treatment on the area. She had some skin changes as a result, mostly a kind of sunburn. She found the treatment made her very tired. Radiation treatment stopped in September/October or so.

She was put on an aromatase inhibitor, Relafin (I think) which has the nice side effect of cognitive impairment. This she was not warned about and had to learn about it online after the symptoms were preventing her from doing almost anything. She asked her doctor about it and he said "oh yeah, that can happen." She talked about it with a family friend who is a cancer specialist (but not a breast cancer specialist) who felt that an aromatase inhibitor was not the correct way to treat a totally focalized instance of cancer and that the side effects would outweigh the benefits.

After much deliberation my mother determined that if she couldn't think then she didn't want to live, as thinking is what makes her tick. It's true, she's a very analytical person who is constantly using her critical thinking skills -- not having access to them would just be wrong, it wouldn't be her. So currently she's not taking anything, just watching her diet, increasing her consumption of fiber and eating more organic food.

I think she's still physically dealing with the stress and I know that she's wanting to lose some weight. Her endocrinologist has cut back her thyroid medication level, thinking that as humans mature they can't handle such a large dose of TSH all at once. Having been on thyroid medication since the late 1960's though, this means that her body is running a lot more slowly than it was used to -- and her early doses of medication were much higher than they would start someone on today. It's just another drag for her though, and too bad as well. She mentioned to me during my visit last weekend that she hopes that someday someone would come up with a better delivery system for thyroid medication that would better mirror the body's typical pulsing doses.

So, she's doing well and taking care of herself and she's got a good outlook. I guess, if that was the bargain (her health for my second baby) then I can live with it, even if it pains me. She's my mom after all, as imperfect as she is.

A few raindrops turn into a downpour

I went to my niece's first birthday party last night. I've written about how uncomfortable I've been around her, starting during her mother's pregnancy as I lost mine.

The baby was being a pill last night, she was really clingy with her parents and didn't want to hang out really with anyone else. It didn't help that my period showed up yesterday (and wasn't it a full moon or just about as well?) After dinner we gave our presents, a dress I bought at the Lavender Festival last summer, plus a box to store baby keepsakes in and then a photo album in which I placed a bunch of our photos that they didn't have. Then my partner and his brother started playing the piano and guitar together doing old covers and my mother-in-law and I law on the couch. I was soooo tired with the cramps and drop in hormones and all, plus too much socializing all week long.

Then it started, just a couple tears at first which I subtly wiped away pretending my eyes were tired or itching. It's okay, I thought to myself, maybe just letting a little bit out will help me feel better. But as I continued to sit there, the feeling of not being acknowledged for my losses began to swell and gradually I couldn't contain it any more.

I walked over behind my partner who was facing the wall near the piano and whispered in his ear that we needed to go because I was crying. He nodded and then turned his face as he played and kissed my cheek through my hair that I was using to cover my face. At the end of the song he got up and said that it was time for us to go, I was already by the door with my things, and he quickly said goodbye. His brother came over to open the door and saw I was crying and asked if I was okay to which all I could say was its the anniversary of my dead babies not being born, how could I be okay? Which he didn't understand at all as he called after me as I walked into the darkness outside, "what? what?"

I totally lost it then as we drove back home, coughing and crying. My partner understood though, I was grateful for that. I told him that I couldn't keep holding it back, especially around his family since I don't really get any acknowledgement from them because I don't know how to talk to them about it. I told him that I thought that in some ways it was healthier for me to not be around babies and small children because then I could just focus on the me I am and not the me that I'm not, the losses that I've had in that area.

When we came home I continued to cry and it came to me that this time of year, with my two due dates going by without my even being pregnant, it's like having to keep driving past the finish line that you never get to cross.

Now that the family has seen me cry though, the first time I think, I don't know what to do. My instincts are to avoid them now because they couldn't possibly understand having never experienced this type of loss themselves. My other thought is to send them an email, my family and friends as well, and point out to them that January 23rd and February 13th are a time of mourning for me and that I just need a little acknowledgement of that. But I just don't know how that would go over.

Revelations

I've been sick all weekend with an awful cold virus. Using up boxes of tissues and my joints are aching so much. Not much fun. I didn't go out shopping so instead I've been doing what I call "cooking something from nothing"; we're having long grain and brown rice with roasted brussel sprouts, carrots and turnips. It tastes okay but this is not one for the recipe book.

I've been thinking about the holidays this year. I'm making some effort but it feels hollow and I wasn't sure why until I started thinking about it. I used to go back East to see my family; they would drive me crazy but they were my family. Now my mother isn't talking to her family, my grandmother and I aren't speaking since she was so awful in relation to my first pregnancy (a disgrace to the family she said), my sister is in Seattle but I hardly ever see her (though we were best friends when we were growing up) and I find it hard to talk to my brother, he's not grounded in reality unfortunately. Add to that how little support my family gave to me during my miscarriages and after my surgery last year and it feels like my family has fully disintegrated -- and much of it feels to me to be related to my fertility issues.

So my family isn't really there anymore, and the family we were going to have hasn't materialized. Add to that the feeling of general alienation the past few years have engendered in me and socially I've been feeling isolated as well -- probably more through my own doing than not. It's no wonder really that I hit the wall with the TTC business.

Years ago, a friend of mine told me when life felt out of control to me that I needed to create touch stones for myself in my life. I did take that to heart and it was within months of hearing that message that I met my partner and met a few of my good friends. Over the past years though people have changed jobs, pursued different interests, moved away and so there are fewer touchstones that there once were. There haven't been many people IRL to talk to about what we have been going through, it's hard to talk to friends who know they don't want to have kids about infertility and pregnancy loss. Then the ones that have had kids, well their kids are getting older and so they have parties with a bunch of four year olds, etc. and since we don't have kids we don't get invited (though really I wouldn't want to go anyway).

So I feel like I'm standing at the edge of a bridge, trying to leave one side, two failed attempts to cross that bridge that hurt me, and a bunch of nasty momminess, child care, teething, diapers, terrible twos etc on the other side (is that supposed to seem appealing?) And more and more I feel like I won't be able to cross the bridge without medical intervention, which I don't want to do. It just feels wrong to me.

I think that my current RE is part of the problem. Over and over in my head do I hear those words from a couple weeks ago "that's (low progesterone) not what's wrong with you" which makes me want to scream back THEN WHAT THE HELL IS WRONG WITH ME?!

If I feel the time comes for another consult I might just consider going with a different RE. Maybe we should even consider going for a consult outside of Seattle, there's too much crap going on with the fertility clinics here. It makes me the patient feel like a pawn or an asset instead of like a person.

By the way, Virginia Mason Hospital decided to close the fertility center outright. Dr McClure, the urologist who did my partner's vasosostomy (vasectomy reversal) was the only one left after Dr Marshall, my RE left to open Pacific NW Fertility. My partner had some crappy frozen sperm there, from before we knew what we weren't going to do and since it was only about 1% kruger we're going to dump it.

That's enough of a book for one night. Thanks for your replies and talk to you soon.

Crash and burn.

I think something may have been trying to gain a hold but then it didn't work for some reason as my temps the past two days have been down. Last night I had my typical luteal phase night sweat as well.

Here are my temps:

cd9 -- 97.5
cd10 -- 97.5
cd11 -- 97.5
cd12 -- 97.5
cd13 -- 97.5
cd14 -- 97.5 (Ovulation)
cd15 -- 98.1 / 1dpo
cd16 -- 98.1 / 2dpo
cd17 -- 98.0 / 3dpo (NPC)
cd18 -- 98.4 / 4dpo (NPC)
cd19 -- 98.1 / 5dpo (NPC)
cd 20 -- 98.1 / 6dpo (50 mg Rx Prog)
cd 21 -- 97.8 / 7dpo (50 mg Rx Prog) (dip to CL)
cd 22 -- 98.6 / 8dpo (50 mg Rx Prog)
cd 23 -- 98.7 / 9dpo (50 mg Rx Prog)
cd 24 -- 98.0 / 10dpo (50 mg Rx Prog)
cd 25 -- 98.1 / 11dpo

Sigh. Someday we'll figure this out. I wish I knew how to get my body and pregnancies to work together in a friendly long-term fashion.

AF is due on Sunday. It will be good to be done with this cycle so I can work more on building my blood stores.

I went away to New York for the weekend, to visit my parents and brother and a few friends. It was an emotional time for me, the first time I've been home since my two miscarriages and my surgery. I'll have to post more about it when I have a chance, I wrote a bunch down on the way home on the plane.

My partner and I had dinner together last night and went for a walk and talked about stuff. We talked about the TTC stuff and when we should try again. I told him that we might need to wait and that listening to one album on the ipod on the way back reminded me of when we didn't have all this TTC crap in our lives. I asked him what he thought and he said that it was up to me, if I want to try he will try and if I want to stop trying then we can do that. We both laughed about the irony that after all we have been through now we have to worry about getting pregnant. I told him that maybe he should just get another vas done. He said that he didn't like how all our recent attempts and failures have been making me so miserable so if I thought that I could make it through with another loss or two we should keep trying but if not then maybe we need to just take a break.

My friend who I saw on Monday said she was sorry that TTC had been such a physically painful thing compared to all the other people she know who have had trouble conceiving. With my great-aunt we talked a bit about what the future might hold for me if it doesn't include children.

It's hard being 35 and having to deal with all this; less time to just step aside and let things happen so it feels. I suppose it just won't get any easier. I'll see how it goes at my doctor appt in the morning. I'm going to ask a lot of questions.

My partner and I have been more lovey since I've been back though and that's a blessing. Things were a little strained due to the m/c as it can happen. In spite of all the family crap, taking a break and even crying some both seemed to help.

Hey, how about that?

My ovaries started hurting last night. First the left one which I thought was curious as that is my stronger ovulating side and it was the side that had the corpus luteum that sustained (or didn't) my last pregnancy. Then a little while later my right ovary started aching. Just aching and aching off and on for the rest of the evening.

A couple weeks ago, when I went for my scan after that big weekend of labor and hemorrhaging, my ovaries were hurting badly as well. The nurse practitioner took a look at them and there wasn't anything that showed up physically in the scan, no cysts or anything, just plain ovaries. It was interesting to me that I could feel so much and an ultrasound didn't show anything. I wonder if one of those color scans would show up differently though, they show blood flow and heat.

But I digress... Late last night when I got home from dinner with my friend I had my first encounter with EWCM since the end of April/beginning of May. Hey I thought, my body is trying to ovulate. I don't think it has happened yet but we're on our way. And that means that I'll get my period in a couple of weeks. Hmmmmm... a couple of weeks from now...when I'll be in New York visiting family. Argh! AF and family visits don't mix very well, especially with my family being as dysfunctional as it is, my having not been there for a year and a half (the longest ever), my friend with her twins that I need to meet (now just over a year old), my mother with her cancer and treatment and me, anemic and still recovering in some ways from my miscarriage. Sounds like a party right?

I had acupuncture this morning and she did an Internal Dragon treatment after I told her that my body is still a bit confused about what just happened to it and that I'm feeling like my whole being is a little confused about pregnancy now as it's such a start and stop experience that never reaches fulfillment. She said it was a good time to try to clear that out. I shed a single tear during the treatment which was done lying on my back and without an open window this time. The needles were in one just below my sternum, one on either side of my navel but out about 1 1/2", on in the outside of each upper thigh and one in each ankle. Again I was to think about letting the grief and confusion go, ask my mind to not block it and ask for help from a higher power. Definately qi was moving around my body, I really could feel it, how resolved I will be from the treatment I don't know. I did go in with bad allergies this morning and after treatment I was cleared up, pretty amazing. My primary thing to work on is my blood deficiency still, everything else in my system is present right now.